James Valvano (21 results)

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Paperback. Condition: new. Paperback. "The Huntington's Poetry Project: Blue and Purple" - Volume 1 WeHaveAFace.org Global HUBS is a 501(c)(3) nonprofit organization created to broaden global awareness of Huntington's disease and Juvenile Huntington's disease. WeHaveAFace.org is based out of Saint Cloud, Florida with HUBS in the USA, Canada, and England. With the participation of the international Huntington's and Juvenile Huntington's disease community, we are pleased to release the first volume of "The Huntington's Poetry Project: Blue and Purple" - poems from our amazing international community. Huntington's disease is a hereditary, degenerative, and terminal brain disease for which there is no current treatment or cure. Huntington's disease is also abbreviated-HD, or Juvenile Huntington's disease-JHD, is an autosomal dominant disease. This means that only one parent must have the mutated gene for a child to inherit the disease. Huntington's does not skip generations. This disease slowly diminishes the affected individual's ability to walk, talk, and reason. In time, the person with HD relies completely upon others for their personal care. HD affects the lives of entire families - emotionally, psychologically, socially, and economically. HD affects males, females, and knows no ethnic and racial boundaries. Many of us within the international community describe the symptoms of JHD/HD as having, ALS, Parkinson's, Alzheimer's, Bipolar disorder, and Schizophrenia - all at the same time. Simply, Huntington's disease is more than a physical disease! Every child of a person with Huntington's disease has a 50/50 chance of inheriting the fatal gene. Often, the individual with HD might seem to be (or act) "drunk" to the on-looker, due to the physical attributes of the disease. Juvenile Huntington's disease (JHD) affects younger individuals. Upwards of 10 percent of known cases of Huntington's disease is the Juvenile form. Individuals who suffer with JHD experience seizures and many other horrific attributes of this disease, however the onset of physical and emotional symptoms happens earlier in life. Diagnosis of JHD usually happens when symptoms manifest before the age of twenty. Important Fact: Every person on the planet has the Huntington gene within their DNA. It is only when this gene expands (via the parent) that the offspring may be at risk, and/or have the disease. *100% of net proceeds are allocated to Juvenile Huntington's disease research, and to our Huntington's Assistance Fund. This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability.

Paperback. Condition: new. Paperback. "The Huntington's Poetry Project: Blue and Purple" - Volume 2. WeHaveAFace.org Global HUBS is a 501(c)(3) nonprofit organization created to broaden global awareness of Huntington's disease and Juvenile Huntington's disease. WeHaveAFace.org is based out of Saint Cloud, Florida with nonprofits in Canada, and England. With the participation of the international Huntington's and Juvenile Huntington's disease community, we are pleased to release the second volume of "The Huntington's Poetry Project: Blue and Purple" - poems from our amazing international community. Huntington's disease is a hereditary, degenerative, and terminal brain disease for which there is no current treatment or cure. Huntington's disease is also abbreviated-HD, or Juvenile Huntington's disease-JHD, is an autosomal dominant disease. This means that only one parent must have the mutated gene for a child to inherit the disease. Huntington's does not skip generations. This disease slowly diminishes the affected individual's ability to walk, talk, and reason. In time, the person with HD relies completely upon others for their personal care. HD affects the lives of entire families - emotionally, psychologically, socially, and economically. HD affects males, females, and knows no ethnic and racial boundaries. Many of us within the international community describe the symptoms of JHD/HD as having, ALS, Parkinson's, Alzheimer's, Bipolar disorder, and Schizophrenia - all at the same time. Simply, Huntington's disease is more than a physical disease! Every child of a person with Huntington's disease has a 50/50 chance of inheriting the fatal gene. Often, the individual with HD might seem to be (or act) "drunk" to the on-looker, due to the physical attributes of the disease. Juvenile Huntington's disease (JHD) affects younger individuals. Upwards of 10 percent of known cases of Huntington's disease is the Juvenile form. Individuals who suffer with JHD experience seizures and many other horrific attributes of this disease, however the onset of physical and emotional symptoms happens earlier in life. Diagnosis of JHD usually happens when symptoms manifest before the age of twenty. Important Fact: Every person on the planet has the Huntington gene within their DNA. It is only when this gene expands (via the parent) that the offspring may be at risk, and/or have the disease. *100% of net proceeds are allocated to Juvenile Huntington's disease research, and to our Huntington's Assistance Fund. This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability.

Paperback. Condition: new. Paperback. For a long time, they remained silent and untouched.hidden in the rearmost part of my closet. I actually hated them.I gave up on them. But in 2015, I had to "clean out my closet" .I had to see them again.begin again.adding pieces of me to the collection. They are poems.just pieces of me, from an unfiltered mind. This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability.

Paperback. Condition: new. Paperback. James Valvano was diagnosed with Huntington's disease in 2009. Huntington's disease (HD) is a hereditary, degenerative, and terminal brain disease for which there is no current treatment or cure. Huntington's does not skip generations. This disease slowly diminishes the affected individual's ability to walk, talk, and reason. In time, the person with HD relies completely upon others for their personal care. HD affects the lives of entire families - emotionally, psychologically, socially, and economically. HD affects males, females, and knows no ethnic and racial boundaries. Many of us within the international community describe the symptoms of JHD/HD as having, ALS, Parkinson's, Alzheimer's, Dementia, Bipolar disorder, and Schizophrenia - all at the same time. Simply, Huntington's disease is more than a physical disease! Every child of a person with Huntington's disease has a 50/50 chance of inheriting the fatal gene. Often, the individual with HD might seem to be (or act) "drunk" to the on-looker, due to the physical attributes of the disease.In March of 2011, James created the nonprofit organization called WeHaveAFace.org. The mission of the organization is to broaden global awareness of Huntington's and Juvenile Huntington's disease. Currently, the organization has nonprofits in Canada, Mexico, England and Wales, and Germany.James wrote "One With The Blue" after recalling a question from a psychology professor: "If you could depict the end of your life, how would you write your story?" For James, One With The Blue anwers that question. James Valvano is also an award-winning documentary filmmaker and continues to broaden global awareness of Huntington's and Juvenile Huntington's disease. For more information about this disease, visit: This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability.

Paperback. Condition: new. Paperback. Life Interrupted, Volume 2, continues to tell the stories of people living with Huntington's and Juvenile Huntington's disease. From mothers who have lost their precious children to JHD and HD to patients who are living with HD, all are compelling stories of strength, perseverance, and courage. Some are caregivers for multiple generations; some didn't know about the disease being in the family until it struck with all its fierceness. All are stories of unbelievable struggle, loss, and hope. This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability.