Amyotrophic Lateral Sclerosis: Understanding and Optimizing Quality of Life and Psychological Well-Being - Softcover

Softcover

ISBN 10: 0198757727 ISBN 13: 9780198757726

Publisher: Oxford University Press, 2018

Synopsis

Amyotrophic Lateral Sclerosis (ALS) is a devastating neurodegenerative disorder with a progressive and fatal course, with no known medical therapies that can reverse the disease or halt its progression. Palliative care is the mainstay of disease management, aimed at maximizing Quality Of Life (QOL) for the patient and caregiver. Clinicians caring for patients with ALS need to understand complex psychological issues in the patient and caregiver, including depression, anxiety, hopelessness, and wish for hastened death (physician-assisted suicide). They also need to confront the psychological implications of rapidly advancing genetic research, the impact of cognitive and behavioural dysfunction in a sizable minority of ALS patients, and caregiver burnout. Healthcare providers can optimize care by better understanding not only these factors, but by learning how to facilitate their management with problem-solving, coping techniques, and with psychologically-based approaches such as mindfulness and other non-pharmacological approaches aimed at maximizing QOL.

Amyotrophic Lateral Sclerosis: Understanding and Optimizing Quality of Life and Psychological Well-Being provides a detailed review and evaluation of ALS, presented in a comprehensive and integrated fashion. The book achieves this through detailed and up-to-date information about the current state of knowledge in this field. It also offers new insights regarding future directions for research. This book will provide clinicians with a comprehensive description of the psychological aspects of ALS and their management, and incorporates chapters written by recognized scholars in their respective fields.

About this title

About the Author

Francesco Pagnini is an Assistant Professor in the Department of Psychology at the Catholic University of the Sacred Heart in Milan, Italy. He is also an Associate in the Department of Psychology, Harvard University, Cambridge, MA, USA.

Zachary Simmons is a Professor in the Departments of Neurology and Humanities at Penn State Hershey Medical Center, Hershey, PA, USA.

Edition details

• Publisher: Oxford University Press
• Publication date: 2018
• Language: English
• ISBN 10: 0198757727
• ISBN 13: 9780198757726
• Binding: Paperback
• Number of pages: 296
• Editor: Pagnini Francesco, Simmons Zachary