Melissa J. Hogan

Melissa J. Hogan, JD, is a parent to a child with a rare, genetic disease who has faced a countless number of surgeries, specialists, and as a result, medical trauma. In addition to caregiving and advocating for her son’s needs, she is a consultant for clinical trials in rare and neurodegenerative disorders and has published in several medical journals. She also founded the leading research and advocacy foundation in Hunter syndrome, Project Alive, which has raised millions of dollars for research, and previously worked as a attorney in the healthcare field. She is a frequent speaker on health care and educational advocacy, rare diseases, and clinical trials. She lives with her three sons and a service dog outside Nashville, Tennessee.