Sally Everett

In January 1993, at age fifty, Sally Everett was diagnosed with Alpha-1 antitrypsin deficiency and chronic obstructive pulmonary disease (Alpha-1 COPD). After a week of self-pity, followed by a year of self-indulgence, she decided that instead of giving up, she would give back. Since then, Everett has been a board member and sometime chair of the Alpha-1 Foundation, as well as a member of its Public Policy and Ethical, Legal, and Social Issues Working Groups. She currently serves on the foundation's Medical and Scientific and DNA & Tissue Bank Advisory Committees and chairs the Scientific Honors Advisory Committee. For seven years she served on the board of the Association for the Accreditation of Human Research Protection Programs, Inc. (AAHRPP). She has been a subject in Alpha-1 clinical trials and a member of the Alpha-1 Association since 1994.

Everett, a 1965 graduate of Mount Holyoke College and a lawyer by trade, retired in January 2003 as Regional Director of the New York State Attorney General's Medical Fraud Control Unit. She lives happily with her husband, Dr. Gordon L. Snider, in Longmeadow, Massachusetts. This book is her gift to the Alpha-1 Community. Half of all profits will go to the Alpha-1 Foundation to further research for a cure for Alpha-1 and COPD.