THE WAY WE ROLL, NOW COMES MITOCHONDRIAL
Language: English
Published by Peppertree Press, 2021
- Hardcover
- New
Seller: Speedyhen, Hertfordshire, United KingdomSpeedyhen
AbeBooks seller since November 26, 2009
Condition: New
£ 25.28
Quantity: 1 available
Add to basketSeller Inventory # NW9781614937777
- Title
- THE WAY WE ROLL, NOW COMES MITOCHONDRIAL
- Author
- CULLINANE, RUTH ANN
- Publisher
- Peppertree Press
- Publication year
- 2021
- Condition
- NEW
- Binding
- Hardcover
- Language
- English
- ISBN 10
- 161493777X
- ISBN 13
- 9781614937777
Mitochondrial myopathies encompass major muscular problems, but so much more. This book is about the journey of a woman to uncover the source of her hereditary disorder. It was an illness that unflaggingly plagued her family for generations. Initially intermittent and invisible, with time, it morphed into a disease with severe and life-threatening symptoms. She endures false starts and numerous dead-ends, as she sets about discovering the origin of this mysterious illness dating back to her great-grandfather, who served in the Civil War. His early disability pension application included several notes from physicians documenting his difficulties in detail. Their observations provided essential and defining clues to his disability. An accurate diagnosis is often challenging to find. The writer shares her story, hoping it may help someone else to know they are not alone as they initiate their search in this broad and perplexing area. To further complicate the matter, some diseases are not yet recognized. Every delay in diagnosis, she notes, puts off a better future. As a communication sciences specialist, the author chronicles life with her disease from personal experience and an informed professional perspective. To her, it was as though she had prepared for this illness her whole life.
With my illness, my body spun an alternate universe, and with time, the new reality expanded with each new symptom or twist and turn. Other complications loomed, and their intricacies were so numerous as to take my breath away. The disease created a universe of alternate senses with no cancellation option available. Soft fabrics burned my skin, while perfectly normal-looking skin itched. Blistered skin may not hurt at all. For no discernible reason, lightning pains chose to strike quickly and deep in new and unanticipated places, leaving me to wonder if I had a new problem or just another transient incident.
One day, without warning, I blacked out and then promptly regained consciousness, wondering, "What just happened here?" It was a mostly unforeseen problem that could cause serious injuries. It was also uncontrollable to no small degree. Numbness and tingling were near constant companions, necessitating having to scan for unfelt injuries periodically. Warned that if my shoes were too tight, they could cause wounds capable of bringing about my early demise, I changed them every day.
"Synopsis" may belong to another edition of this title.
Speedyhen
Hertfordshire, United Kingdom
AbeBooks seller since November 26, 2009
Shipping rates from United Kingdom to U.S.A.
| Item | 60 to 60 business days | 60 to 60 business days |
|---|---|---|
| First item | £ 41.00 | £ 43.00 |
Payment methods
Seller's business information
Speedy Hen LTD
Unit 10, Faraday Close
Watford, United Kingdom WD18 8SA
Terms of sale
Orders usually ship within 2 business days. Shipping costs are based on books weighing 2.2 LB, or 1 KG. If your book order is heavy or oversized, we may contact you to let you know extra shipping is required.
Right of withdrawal
If you are a consumer you can withdraw from the contract in accordance with the following. Consumer means any natural person who is acting for purposes which are outside his trade, business, craft or profession.
Information regarding the right of withdrawal
Statutory right to withdraw
You have the right to withdraw from this contract within 14 days without giving any reason.
The withdrawal period will expire after 14 days from the day on which you acquire, or a third party other than the carrier and indicated by you acquires, physical possession of the last good or the last lot or piece.
To exercise the right of withdrawal, electronically fill in and submit a clear statement on our website, under "My Purchases" in "My Account". We will communicate to you an acknowledgement of receipt of such a withdrawal on a durable medium (e.g. by e-mail) without delay.
To meet the withdrawal deadline, it is sufficient for you to send your communication concerning your exercise of the right of withdrawal before the withdrawal period has expired.
Effects of withdrawal
If you withdraw from this contract, we will reimburse to you all payments received from you, including the costs of delivery (except for the supplementary costs arising if you chose a type of delivery other than the least expensive type of standard delivery offered by us).
We may make a deduction from the reimbursement for loss in value of any goods supplied, if the loss is the result of unnecessary handling by you.
We will make the reimbursement without undue delay, and not later than 14 days after the day on which we are informed about your decision to withdraw from this contract.
We will make the reimbursement using the same means of payment as you used for the initial transaction, unless you have expressly agreed otherwise; in any event, you will not incur any fees as a result of such reimbursement.
We may withhold reimbursement until we have received the goods back, or you have supplied evidence of having sent back the goods, whichever is the earliest.
You shall send back the goods or hand them over to Speedyhen, Eastbourne, United Kingdom, +44 02031763822, without undue delay and in any event not later than 14 days from the day on which you communicate your withdrawal from this contract to us. The deadline is met if you send back the goods before the period of 14 days has expired. You will have to bear the direct cost of returning the goods. You are only liable for any diminished value of the goods resulting from the handling other than what is necessary to establish the nature, characteristics and functioning of the goods.
Exceptions to the right of withdrawal
The right of withdrawal does not apply to:
- The delivery of newspapers, journals or magazines with the exception of subscription contracts; and
- The supply of digital content which is not supplied on a tangible medium (e.g. on a CD or DVD) if you accepted when you placed your order that we could start to deliver it, and that you could not withdraw once delivery had started.
Shipping terms
Shipping costs are based on books weighing 2.2 LB, or 1 KG. If your book order is heavy or oversized, we may contact you to let you know extra shipping is required.