This book will be one of the first of its kind to combine financial planning knowledge with a focus on families who have members with disabilities. John and Cynthia have done a lot of work to transform their financial planning presentations into an accessible printed format. This book is a general guide for helping families ""plan for two generations"" (i.e., the financial planning needs of the primary caregiver and the person with disabilities). For some readers, it will relieve their anxieties about planning, and for others it will raise their awareness about the need to plan. Since every family's specific situation is unique, the book is not intended to provide a specific formula for success. However, it bridges the gap between the ultimate vision a family has for their child and the financial realities of making these dreams come true. The structure of the book follows a chronological guideline of the critical transition periods that families face. The book also focuses on identifying and protecting government benefits as well as strategies to supplement government benefits.
John W. Nadworny, M.B.A., CFP(R), ChSNC(R), Founding Partner, Affinia Financial Group, Burlington, MA (www.affiniafg.com and www.specialneedsplanning.com) John had both his career and family well underway when his third child, James, was born with special needs. This life event immediately and dramatically changed both the course of his plans for the future and his priorities. Planning with families over a span of decades has provided John with an education like no other. This specialized knowledge allows him to understand the personal and financial resources needed to present viable options and possible solutions for families with unique and challenging circumstances. He received industry wide recognition when Investment News chose to feature John and his family as the cover story of their September 2017 issue devoted to planning for individuals with special needs. They also produce a video, A Father First, telling the story of Johnâ (TM)s interwoven personal and professional lives. In Massachusetts, John was also a proud participant in the rollout of the ABLE (Achieving a Better Life Experience) Account. John has earned a Master of Business Administration from Babson College, a Master of Science from Bentley College, and a Bachelor of Science from Bridgewater State College. He is a member of the Financial Planning Association and the Academy of Special Needs Planners.
Cynthia R. Haddad, CFP(R), ChSNC(R) Founding Partner, Affinia Financial Group, Burlington, MA (www.affiniafg.com and www.specialneedsplanning.com) Cynthia grew up watching her parents love and care for her older brother with special needs, while juggling the needs of the whole family. She understands firsthand that lives are complex and with each day comes the possibility of new challenges and successes. Early in her career, she began to view her profession through a personal lens, recognizing the unique nature of the financial planning requirements of families like her own. Cynthia applies her extensive planning skills and empathetic approach to her practice advising individuals, families, and trustees. She understands the importance of taking a pragmatic approach to the planning process and focuses on communication, guidance, and encouragement to keep her clientsâ (TM) actions aligned with their goals. Cynthia earned a Bachelor of Arts in finance and economics from Simmons University (formerly Simmons College) in Boston. She is a member of the Financial Planning Association and the Academy of Special Needs Planners.
Leo V. Sarkissian has led The Arc of Massachusetts as Executive Director since 1991, after enter ing the disability field in 1976. During Leo's tenure, The Arc, a statewide advocacy
organization:
1. Insured adult transition services for graduating students (now 1,300 annually).
2. Expanded Family Support or Respite programs to $84.9 million.
3. Changed eligibility regulations so that persons with intellectual or cognitive
disabilities could participate in the Personal Care attendant program.
4. Worked toward passage of several bills, including self-direction, service to
adults with autism spectrum disorder (ASD) and developmental disabilities,
and a registry for staff substantiated for abuse.
5. Established community services for 3,844 individuals through settlements
from two waiting-list cases.
6. Established a strong education-outreach record with publications and website
tools to assist individuals in planning housing, person-centered planning, and
social inclusion. A health equity program reaches five medical or graduate
nursing programs.
7. Saw the Massachusetts Department of Developmental Services grow to
become a $2.3 billion state agency.
Prior to his statewide advocacy role, Leo oversaw a multi-service agency that
provided residential, employment/day, personal care assistance, early intervention,
and family support services. He also has served as a clinician with various roles,
including counseling, emergency services, and a team member in the development
of adult community services.
