Sharing Linked Data for Health Research (Paperback)
Language: English
Published by Cambridge University Press, Cambridge, 2025
- Softcover
- New
Seller: Grand Eagle Retail, Bensenville, IL, U.S.A.Grand Eagle Retail
AbeBooks seller since October 12, 2005
Condition: New
£ 33.96
Quantity: 1 available
Add to basketItem description from seller
Paperback. Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address wicked problems in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise. This book will benefit researchers and research institutions by explaining the regulatory environment for access to government held data for research. The book will also be valuable to government policy makers and decision-makers around the world by providing comparative examples of global best practice to guide reform. This item is printed on demand. Shipping may be from multiple locations in the US or from the UK, depending on stock availability.…
Seller Inventory # 9781108445368
- Title
- Sharing Linked Data for Health Research (Paperback)
- Author
- Carolyn Adams
- Publisher
- Cambridge University Press, Cambridge
- Publication year
- 2025
- Condition
- new
- Binding
- Paperback
- Language
- English
- ISBN 10
- 1108445365
- ISBN 13
- 9781108445368
- Series
- Book 36 of 37: Cambridge Bioethics and Law
"Synopsis" may belong to another edition of this title.
About the Author
Judy Allen is an Honorary Fellow of the Law School at the University of Western Australia with expertise in in torts, health law, and research ethics. She has provided policy advice to the Western Australian (WA) data linkage unit, government data custodians, and the Population Health Research Network on ethics, privacy, and data sharing processes. She has extensive experience in human research ethics and has chaired the WA Department of Health Human Research Ethics Committee, a specialist committee providing ethical review of data-based research projects, and the WA Country Health Service Human Research Ethics Committee.
Felicity Flack is the Manager, Policy and Client Services for Australia's national data linkage infrastructure, the Population Health Research Network. She has extensive experience in the development, coordination and operation of national data linkage systems particularly the navigation of cross-jurisdictional legislative, policy and ethical issues. She also has many years of experience in research ethics including working as a research ethics manager as well as being a member and Chair of the Sir Charles Gairdner and Osborne Park Health Care Group Human Research Ethics Committee. Felicity is a Churchill Fellow.
"About the title" may belong to another edition of this title.
Grand Eagle Retail
Bensenville, IL, U.S.A.
AbeBooks seller since October 12, 2005
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