My Life, My Science: Pursuing a Cure for Huntington's Disease

Nancy Sabin Wexler

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Language: English

Published by Cold Spring Harbor Laboratory Press Mär 2026, 2026

1621825450 / 9781621825456

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Neuware - 'An intimate and eloquent memoir of scientific discovery, social policy-making, and self-reflection that is as inspiring as it is harrowing. With verve, wit, and passion, Wexler tells her story of creating a new model for biomedical research while racing to find a cure for the lethal family disease she herself will one day inherit.' -- Dr. Sanjay Gupta, neurosurgeon, CNN medical reporter, and author 'Nancy Wexler's story is a lesson in courage, fortitude, heroism, and above all . love. I read it in one gulp. My heart is full.' -- Carol Burnett, actor and writer When Nancy Wexler was 23, her father revealed that the mysterious illness inexorably diminishing her mother had a name. Huntington's disease, a fatal, hereditary, neurodegenerative disorder. Newly aware she had a fifty-fifty chance of developing the same condition, Wexler could have retreated. Instead, she immersed herself in what has become a lifetime's pursuit of the causes of the disease and a cure. She pioneered groundbreaking fieldwork that enabled the identification of the responsible gene. She took charge of what is now the Huntington's Disease Foundation and made it a force to be reckoned with. And when the human genome became a focus of scientific study, she was an eloquent voice for patients in disease gene research and insistent advocate for ethical use of genome sequence information. Now living with Huntington's disease, Nancy Wexler has drawn on decades of letters, research notes, and vivid memories to describe her remarkable life with warmth, wit, and unsparing honesty. She takes us from a privileged but shadowed California childhood to the shores of Venezuela's Lake Maracaibo, where she and colleagues earned the community trust that enabled them to collect blood samples and construct pedigrees, to the innovative consortium of research laboratories where those samples revealed the malevolent gene, to the halls of Congress where she pressed legislators for resources, and the boardrooms where philanthropists were persuaded into action. In this book, Wexler tells a unique story about the intertwining of personal stakes and professional passions, a testament to her courage, persistence, and belief that science can change destinies--one life, one family, one gene at a time.…

Seller Inventory # 9781621825456

Title
My Life, My Science: Pursuing a Cure for Huntington's Disease
Author
Nancy Sabin Wexler
Publisher
Cold Spring Harbor Laboratory Press Mär 2026
Publication year
2026
Condition
Neu
Binding
Buch
Language
English
ISBN 10
1621825450
ISBN 13
9781621825456
Item weight
518 grams
Dimensions
234x159x27 mm

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