Uno de los retos principales que enfrentan hoy las personas con enfermedades raras est� en el lenguaje y la comunicaci�n. Este volumen re�ne estudios en los que investigadores de distintas �reas de conocimiento de las ciencias sociales y las humanidades trabajan de forma interdisciplinar y apasionada para comprender y ayudar a resolver ese reto. One of the main challenges faced today by people with rare diseases is in language and communication. This volume brings together studies in which researchers from different areas of knowledge in the social sciences and humanities work in an interdisciplinary and passionate way to understand and help solve this challenge.

About the Authors

Josep Solves es profesor adjunto en el departamento de Comunicaci�n e Informaci�n Period�stica de la Universidad CEU Cardenal Herrera, en la que tambi�n es miembro del grupo de Investigaci�n Nuevas Narrativas, Medios y Audiencias (NMA). As�mismo, dirige el Instituto de Investigaci�n ODISEAS. Su labor investigadora se ha centrado en el estudio de la comunicaci�n y la discapacidad, las enfermedades raras o las migraciones.

Antonio Miguel Ba��n Hern�ndez es catedr�tico de Lengua Espa�ola en la Universidad de Almer�a y miembro del Centro de Investigaci�n en Comunicaci�n y Sociedad (CySOC). Una de sus l�neas prioritarias de investigaci�n es el an�lisis del discurso sobre la salud y la enfermedad. En torno a este tema, ha publicado un centenar de trabajos en los que ha prestado una atenci�n particular a las denominadas "enfermedades raras o poco frecuentes".

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