Items related to Resilient As Always
Synopsis
Fibrodysplasia ossificans progressiva, or FOP, is a rare genetic condition that affects one in one million people. This condition causes muscles and connective tissues to gradually turn into bone. Symptoms usually begin during childhood and can restrict movement. "Resilient As Always" aims to support these brave children emotionally during their FOP journey. We hope to inspire resilience and hope for these courageous kids.
Endorsement
"Resilience and Hope. That is the message that Danielle and Dean Wang portray in their beautifully illustrated parable “Resilient As Always.” Waiting for a cure is not an answer for Lily or her family; her life must be lived as a cure is desperately pursued. Her struggle against FOP - one of life’s rarest & and most disabling conditions - and the love of her family show us that diseases are not just biological processes; they are human experiences. As someone like Lily told me long ago, 'I may have FOP, but it’s not who I am.'"
--- Frederick S. Kaplan, M.D., Philadelphia
About FlairCare
Danielle Wang and Dean Wang are the founders of FlairCare, a 501(c)(3) nonprofit organization based in the United States. FlairCare aims to cultivate healing environments that enrich youth physical and mental health. Reaching local and global communities, the organization's initiatives include drawing with pediatric patients, collaborating with children's hospitals, and creating the As Always illustrated book series. Please reach out to join our mission, delivered with Flair!
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Resilient As Always
Print on DemandSeller: California Books, Miami, FL, U.S.A.
Seller rating 4 out of 5 stars
Condition: New. Wang, Danielle (illustrator). Print on Demand. Seller Inventory # I-9798335956048
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Resilient As Always
Seller: PBShop.store US, Wood Dale, IL, U.S.A.
Seller rating 5 out of 5 stars
PAP. Condition: New. Wang, Danielle (illustrator). New Book. Shipped from UK. Established seller since 2000. Seller Inventory # L2-9798335956048
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Resilient As Always
Seller: PBShop.store UK, Fairford, GLOS, United Kingdom
Seller rating 5 out of 5 stars
PAP. Condition: New. Wang, Danielle (illustrator). New Book. Shipped from UK. Established seller since 2000. Seller Inventory # L2-9798335956048
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£ 15.85
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Ships from United Kingdom to U.S.A.
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Resilient As Always (Paperback)
Print on DemandSeller: CitiRetail, Stevenage, United Kingdom
Seller rating 5 out of 5 stars
Paperback. Condition: new. Wang, Danielle (illustrator). Paperback. Fibrodysplasia ossificans progressiva, or FOP, is a rare genetic condition that affects one in one million people. This condition causes muscles and connective tissues to gradually turn into bone. Symptoms usually begin during childhood and can restrict movement. "Resilient As Always" aims to support these brave children emotionally during their FOP journey. We hope to inspire resilience and hope for these courageous kids.Endorsement"Resilience and Hope. That is the message that Danielle and Dean Wang portray in their beautifully illustrated parable "Resilient As Always." Waiting for a cure is not an answer for Lily or her family; her life must be lived as a cure is desperately pursued. Her struggle against FOP - one of life's rarest & and most disabling conditions - and the love of her family show us that diseases are not just biological processes; they are human experiences. As someone like Lily told me long ago, 'I may have FOP, but it's not who I am.'"--- Frederick S. Kaplan, M.D., PhiladelphiaAbout FlairCareDanielle Wang and Dean Wang are the founders of FlairCare, a 501(c)(3) nonprofit organization based in the United States. FlairCare aims to cultivate healing environments that enrich youth physical and mental health. Reaching local and global communities, the organization's initiatives include drawing with pediatric patients, collaborating with children's hospitals, and creating the As Always illustrated book series. Please reach out to join our mission, delivered with Flair! This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability. Seller Inventory # 9798335956048
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£ 18.99
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Ships from United Kingdom to U.S.A.
Ships from United Kingdom to U.S.A.
Quantity: 1 available