My Tummy Doesn’t Know When It’s Full: A Children’s Story and Learning Guide to Prader-Willi Syndrome, Hyperphagia, Food Security, Big Feelings, and Friendship - Softcover

Mandd, Colin

Softcover

ISBN 13: 9798170339112

Publisher: Independently published, 2026

Synopsis

What if your child's body kept saying “I'm hungry” even when everyone else had already moved on? My Tummy Doesn't Know When It's Full is a warm, beautifully illustrated story and learning guide that helps children understand Prader-Willi syndrome with compassion, clarity, and hope

The Challenge For children living with Prader-Willi syndrome, hunger can feel freely strong and persistent. Food routines, unexpected changes, social situations, and questions from other children can sometimes bring frustration, worry, embarrassment, or big emotions. At the same time, friends, siblings, classmates, and even adults may not fully understand why a child needs different routines or support.

Without the right exploration, persistent hunger can be mistaken for greed, food plans can look unfair, and well-meaning friends may not know how to help.
A Gentle, Child-Friendly Way to Understand PWS Through Milo's everyday experiences with family, school, friends, meals, celebrations, changing plans, and the things he loves most, This book takes readers inside the emotional world of a child with Prader-Willi syndrome.

Rather than defining Milo by his diagnosis, the story shows a funny, creative, curious child who loves rocks, friendship, learning, and big ideas. Along the way, children discover what hyperphagia can feel like, why predictable food routines can provide reassurance, how big feelings can be named, and why getting different support does not mean being treated unfairly.
The story is supported by an engaging learning guide that makes complex ideas easier for young readers to understand without making the book feel clinical or overflowing.

Inside, readers will discover:

• A true story that helps children understand Prader-Willi syndrome from a child's perspective
• A simple exploration of hyperphagia and why persistent hunger is not greedy or bad behavior
• Gentle lessons about big feelings, frustration, anxiety, confidence, and self-advocacy
• Why predictable routines and food security can help some children feel calmer and safer
• Practical examples of how friends can show kindness, respect boundaries, and include others
• An easy-to-understand explanation of why fairness does not always mean everyone receives exactly the same thing
• Colorful illustrations, feelings charts, schedules, examples, and child-friendly visual learning
• Thoughtful discussion questions that encourage empathy, communication, and deeper understanding
• Helpful guidance for families on continuing important conversations at home
• Supportive ideas for teachers and educators creating welcoming, inclusive classrooms
• A powerful reminder that every child is much more than one diagnosis, challenge, or difficult moment

This book is especially meaningful for children with PWS, siblings, classmates, parents, caregivers, therapists, special-education professionals, and families looking for an accessible way to talk about differences with kindness and respect.
At its heart, My Tummy Doesn't Know When It's Full carries one unforgettable message:

A child may need a plan. A child may need extra support. But every child also needs friendship, understanding, joy, and the freedom to be seen as a whole person

Give a child the words to understand. Give a friend the tools to care. Give families and classrooms a gentler way to talk about Prader-Willi syndrome.

Add My Tummy Doesn't Know When It's Full to your library today and help make understanding, kindness, and believing part of every child's story.

Edition details

• Publisher: Independently published
• Publication date: 2026
• Language: English
• ISBN 13: 9798170339112
• Binding: Paperback
• Number of pages: 81