Clear information and advice for families on what to do if your child has PANDAS, PANS or encephalitis
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A Parent's guide to PANDAS, PANS and Related Neuroimmune Disorders is dramatic as it is revealing written by those on the front-line of these debilitating illnesses. This highly-readable guide forces us rethink our definitions of mental illness. Above all, this guide offers coping strategies, hope and optimism the general medical community is unable to give. --Tim Sorel, Professor, University of Florida, Producer/Director of My Kid is Not Crazy: a search for hope in the face of misdiagnosis
A Parents' Guide to PANDAS, PANS and Related Neuroimmune Disorders will be a dog-eared, high-lighted, bookmarked constant companion for parents of children with PANS! It packs practical recommendations for parents from parents, with illustrative case vignettes, up-to-date information, and tools for navigating the journey to healing. It will help parents understand these disorders, work collaboratively with medical and educational professionals and care for their children and themselves. I will recommend it to my patients' families and their medical and educational care teams. --Margo Thienemann MD, Director of PANS Program Psychiatry, Clinical Professor of Psychiatry, Stanford University School of Medicine
Patricia Rice Doran is Assistant Professor of Special Education at Towson University, Maryland. Christine L. Amabile is a Licensed Clinical Social Worker, currently working full time in the school system and part time as a private practice outpatient therapist. Diana Pohlman is founder and Chairman of the Board of PANDAS Network, the primary research non-profit in the USA. She lives in California. Tiffany Tumminaro is a Social Work Adjunct Professor for Aurora University, been practicing as a social worker since 2004, and is an active member of the PANDAS/PANS Advisory Board through the Illinois Department of Public Health.
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