Yearning for Normal: My Son's Life with Deletion 22q.11 - Softcover

Ellison Busch, Susan

Softcover

ISBN 10: 1625106726 ISBN 13: 9781625106728

Publisher: Tate Publishing & Enterprises, 2013

Synopsis

I phoned for an ambulance. As I called, Mike paced back and forth in the kitchen saying, 'Just drive me. I'll be okay.' He told me that he had been cooking meatballs and his shirt caught on fire. While waiting for the ambulance, I got him some pants for modesty, covering his burnt waist and buttocks. I remembered a little from nursing school about burns, so I tried to get him to lie down on a quilt since I knew he was in danger of going into shock. This heartbreaking journey will take Susan Busch and her son, Mike, through hospitals, backyards, schoolrooms, psychiatric wards, a court room, a burn unit, and the corridors of Susan's own heart. But beyond the struggles of adjusting to life with this deletion, there is a tale of humanity, with all its sorrow, love, and hope. This story is not just for the parents of children with 22q.11 Deletion syndrome, but for their friends, neighbors, doctors, nurses, teachers, speech therapists, social workers, police officers, paramedics, firefighters, ministers, and whoever else likes a good story.

About this title

About the Author

Susan Ellison Busch works as a Nurse Practitioner with kidney patients, and is the mother of three grown sons. She has spoken at national conferences on topics related to kidney disease and also about raising a son with Deletion 22q.11 syndrome. When she isn’t working or trying to write, she enjoys the trees and the sky, horseback riding, playing tennis, and eating onion rings with her son Mike. She is currently working on a novel that takes place in a dialysis unit.

Edition details

• Publisher: Tate Publishing & Enterprises
• Publication date: 2013
• Language: English
• ISBN 10: 1625106726
• ISBN 13: 9781625106728
• Binding: Paperback
• Number of pages: 328