A Bill Of Rights For Periodic Paralysis Patients: The Periodic Paralysis Network A.S.E.A. Series: Volume One: Volume 1 (The Periodic Paralysis Network ... Awareness, Support, Education, Advocacy) - Softcover

Knittle-Hunter, Susan Q; Hunter, Calvin

Softcover

ISBN 10: 151719623X ISBN 13: 9781517196233

Publisher: CreateSpace Independent Publishing Platform, 2015

Synopsis

There was and is a great need for a bill of rights for all individuals who have a form of the disabling mineral metabolic disorder known as Periodic Paralysis. The Periodic Paralysis Network (PPN), inspired by the members of the ‘Periodic Paralysis Network Support, Education and Advocacy Group’ has now created 'A Bill of Rights For Periodic Paralysis Patients.' This booklet, the first in the PPN A.S.E.A. Series (Awareness, Support, Education and Advocacy), begins with an explanation of what a ‘bill of rights’ is and why they are written or created. 'A Bill Of Rights For Periodic Paralysis Patients' is outlined in seven sections, covering general rights, diagnosis, treatment in labs, treatment by doctors and treatment in the emergency room and the areas of research, awareness and insurance. In those, each concept is described and explained based on the true and actual history, experiences and needs of individuals with Periodic Paralysis. Hopefully, this information will bring about awareness of these issues and educate everyone who has the occasion to read this booklet as well as the medical professionals with whom individuals with Periodic Paralysis must depend upon for correct and proper care.

About this title

About the Author

Calvin and Susan Q. Knittle-Hunter are the co-creators, co-founders and co-directors of the Periodic Paralysis Network, Inc. (PPNI), an independent, educational corporation, designed to provide support, education and advocacy to individuals with Periodic Paralysis (PP). Susan, the Managing Director of PPNI, earned B.S. degrees in Psychology and Special Education at the University of Utah and spent many years as a teacher and case manager working with children and adults with disabilities. She suffers from the rare and disabling mineral metabolic disorder called Periodic Paralysis. Calvin, the Primary Director of PPNI, earned B.S. degrees in Behavioral Science and Psychology at Westminster College and the University of Utah. He also holds a M.Ed. degree in Special Education and M.S. degree in Information Technology from the University of Utah and Capella University. Calvin worked in a variety of fields including teaching, corrections and case management. Calvin and Susan have co-authored and co-published four books; living with Periodic Paralysis: The Mystery Unraveled, The Periodic Paralysis Guide and Workbook: Be The Best You Can Be Naturally, Sotos Syndrome: A Tribute to Sandy and Moments In Time: At Home In The Woods.

Edition details

• Publisher: CreateSpace Independent Publishing Platform
• Publication date: 2015
• Language: English
• ISBN 10: 151719623X
• ISBN 13: 9781517196233
• Binding: Paperback
• Edition number: 1
• Number of pages: 114