In 2001, I was confronted with the most frightening challenge of my life, the diagnosis of a disease called scleroderma. I gradually learnt that this was no ordinary condition, as both my immune and vascular systems are compromised. The body is overproducing collagen throughout the body's cells, tissues, organs, and systems, causing scarring or fibrosis. I felt strongly compelled to stay positive and explored many areas of help by seeking medical, holistic, and spiritual ways of healing. My book reveals the challenging and yet empowering journey I am living. Through a natural desire to express myself, I began writing my thoughts down daily and led to much insight and inspiration. My journal of poems, affirmations, and dedications brings to light a culmination of years of fear, bravery, pain, faith, desperation, and enlightenment. I sincerely hope this reaches the many thousands of people who are struggling just like me, dealing with their day-to-day tribulations of managing an autoimmune disease. I endeavour to deliver comfort and recognition by openly sharing my story and I wish with all my heart and soul that it helps people in some reassuring way or hopefully in a most miraculous way. This is my dream.
"synopsis" may belong to another edition of this title.
| My Book: To My Mother Bettina.............................................. | xiii |
| A Positive Beginning Triumph Over Illness.................................. | xv |
| Introduction: The Beginning................................................ | xvii |
| My Journey.... From July 2001 to Present day............................... | xxi |
| Acknowledgements........................................................... | xxxi |
| Chapter 1 Survival......................................................... | 1 |
| Chapter 2 Bravery & Fear................................................... | 17 |
| Chapter 3 Sadness & Despair................................................ | 27 |
| Chapter 4 Courage & Faith.................................................. | 49 |
| Chapter 5 Compassion....................................................... | 63 |
| Chapter 6 Dedications...................................................... | 83 |
| Chapter 7 Love............................................................. | 123 |
| Chapter 8 Gratitude........................................................ | 135 |
| Chapter 9 Guidance & Insight............................................... | 151 |
| Chapter 10 Inspiration & Intuition......................................... | 181 |
| Chapter 11 Surrender & Enlightenment....................................... | 211 |
| Chapter 12 Spiritual Awareness............................................. | 237 |
Survival
Quote: Anne Lamott
"I do not understand the mystery of grace-Onlythat it meets us where we areBut does not leave us where it found us.
Being Cared For
TO be strong
Is to be vulnerable
Do not conceal
The weaknesses of life, altercation
On Love, Health, Fear or,
Indecision.
Make a stand, a soulful petition
Relinquish all holds
On the truth and be frank
Let it be
Let it be known
I am humbled and meek
In this Need for Care.
Being Cared For
Enables me to come out of
The darkness of denial
Ending this self-defensive spiral.
Steering Your Own Way
Taking responsibility for one's life
In many forms, is essential
Wake up and take the reigns
Your interest and proactive intentions
Opens so many doors in your Name
Staying dormant in wonder
Does not fuel the fire of our soul
It needs our breath and motion
To rise high and make us whole.
We cannot account for others choices
They alone, can lead their own destiny
Staying vigilant on steering your own way
Will bring you closer to the right path
To Freedom and Harmony.
Self-Empowerment
My obsession to lessen
The growing pain of denial,
Has destructive effects on me.
I can't stop when my body needs to
I can't breathe when my body needs to
I can't cry when my body needs to
My search for SELF-EMPOWERMENT is the KEY.
Find the victorious answer from inside
What has transpired may seem out of your control
But what we create
Can also be in our Power to change,
It can be natural.
Adapt To Thrive
The veil of restrictions are lifted
I can now start, without
Freezing in fear to continue
I am NOW evolving
With the lessons I am gifted.
I accept new challenges will arise
Till then, I bask in my ecstasy
Ground myself and live
The world is a changing place
So we too must adapt to thrive.
Just when our mind is made up
Something happens to help us
See a new point of view
I am ever so humbled
When confronted with solutions
I never knew.
Allergy To Msg
For many unknowing years
I questioned my palate and tastebuds
Often been drawn to numerous
Unhealthy yet delicious flavours.
MY savouring was short lived
As not long after the invigorating feast
A drum of dislike was present
In my whole being.
I learnt the lesson soon, one day
What is taken in, Must be natural
The societies lure of addictions
Became an instrument, I wish
To no longer play.
Back To Basics
The body responds
To neglect
Like an outcast
Refused shelter
After a long, hard journey.
Immediate recognition
Is beseeched
Create an Oasis
With the simplest of tasks
Tend to the basics.
Water
Nutritious food
Rest
And tolerance
Your body needs
Attention, without deference.
The Power Within Us All
A creator is within us
We may not see
This part of us
For indeed
Knowing this
Will set us free.
Letting Go
Change is frightening
So is sheer reality
When the penny drops
And you finally put
All the strangling pieces together
You are ready
No more excuses
You are facing a desperate survival
Then you, with grief and
Certainty,
Decide
To let go.
No more self-sacrifice
You are deserving of
A wonderful existence.
Never Retreat
A change is inevitable
Don't give up!
Keep going with our heart
Your mind is weak
But the Soul knows
No defeat.
No More Mercury
One question was asked
The answer seemed surreal
Had it not been asked before?
The point to which I was now
Looking is.... GET THEM OUT
The damage is done, a heavy weight
No further poison ... my plea
For health and justice sake.
This 'quicksilver ore'
Clings to many a taste bud
Without awareness
I eat and drink unknowing
Of the toxins
Of the danger
Of the effects
Their time is up.
Determined Yet Flexible
The way is unknown
I follow tenderness
I follow love and patience
An era of fixed goals is gone
Like the soft current
It f lows acceptingly
In all directions
The water is pliant
It fits cosily amongst the
Oceans strong waves and
Tender ripples
I too must be determined
Yet flexible
Then a wondrous way
I shall find.
The Bounce Back
Amazing stories of Survival
Relinquishing the limits
When faced with
Fight or die.
Get back to being
You.
The natural, unencumbered Spirit
Awakens a miracle to Healing
Catalyst in disguise
It initiates a recall
Of the Superhero
Within us all.
What we need to await
With belief,
Is the Bounce back
The calm after the
Storm of life
Indeed a welcoming
Learning.
Take the next step
To be free
A leap of
Faith
For all Eternity.
Moderation In Moderation
I faint
I tremble
I tire
I realise all
That,
To be truly
In moment by moment
Healing
Be
Moderation in moderation
The world is turning
At its own pace
No rush to catch up
Or be ahead
Of time.
So we must see our lives
As order in the making.
Bravery & Fear
Quote: Father of MotivationDr Wayne Dyer
"Where there is fear, there cannot be love.And where this is love, there cannot be fear."
Honesty Not Fear
Be open and upfront, for what you know
Others may need to know
They will respect your honesty
And be happy to have you share.
What you hide out of fear
May cause fear in others
Treat the fear as a sign
Go ahead and trust
You'll see the fear disappear.
Fear Backwards
Raef
Fear backwards
The other side of fear.
There are so many ways to see
The more pleasant view of a word
To defeat its attachment,
A victim, Not to be.
Real Attention Entices Fulfilment
Releasing All energies Forgiven
Rejoice And Experience Family
Rejoice All Emotional Freedom
Renewing An Ever-loving Future
Renewing An everlasting Faith
Restore All Energy Forever
More Raef
Replace negative with positive
Control your cellular fluctuations
Be proactive in being Preventive
Remember our choice is what comes.
Raef
Resist All Expected Failures
Relive An Encouraging Flattery
Request Absolute Eternal Fairness
Residing At Excitability Fully
Replacing Awareness Eventually Fulfils
Recover At Expedient Favour
Resolve Any Exchange Fruitfully
Many Ways To Turn Fear Around
Reconcile All Errors Finally
Relive An Exquisite Friendship
Require An Energetic Frame
Remember Always, Events Fantastic
Reaching All Expected Fealty (Faith)
Running And Exercising Forcefully
Reaching Awareness Excites Firsthand
REMAIN AN ENERGY FOUNTAIN
The array of positive alternatives
For feeding your Soul its Peace
The healing, resonating sounds
You need every day
ARE ABUNDANT
Like the grains of sands on the beach
Living Fierlessly
I treat each day with honour
I am so grateful for the sunrise
There is joy and fun to be had
Bringing a sense of lightness
Will make the day a treasure
Of delight and ease.
Deep within this surrender
You are
LIVING FIERLESSLY
Approaching the New way
With No sense of fear
But Peace and Love, and
This Brings Inspiration.
Fear Not
Reach, and eventually find.
Regeneration at every forgiveness.
Rediscover an enlightening form.
Restoring awareness encourages fun.
Re-establish an effectual foundation.
Renaissance at every finale.
Rapture at Earths feet.
EMBRACE CHANGE
There was once hesitation
To a curve in my path
I fought against it
Was it wrong?
Through fear and doubt
I resisted.
Welcome the Avatar
No judgement is necessary
The world is free will
Restraints are futile.
Allow each
A sense of growth
Nurture relationships
With open minds and open hearts.
Character Building
I was down and out today
Feels like
I keep
Hitting my head against
A Brick Wall
Of defeat.
No sense in hiding it
I felt the loss
I felt the frustration
I allowed myself to grieve
It bought me to a point
I didn't like to stay at,
So I moved on!
It wasn't nice to feel at the end
I struggle with every problem
Yet I won't lie down and quit!
Oh! NO! Not me.
My Character is strong!
I pick myself up
And
Turn another page of
Hopeful Inspiration
Sadness & Despair
Quote: March 4th 2011Twin SoulsDennis & Alice Jackson
"Just when you think life is turningUpside down, it is turning right side up"
No Other, Like Me
I watched the suffering for too long
Is now the time for release
Trying so hard to live in denial
Will not make you happy or at Peace.
I am what I am, with f laws and marks
There is no other, like me
Keep your individual traits
Treasure yourself as already whole
You need not change at all.
Being me is what I do
If one cannot accept that
Then perhaps I will always
Feel their rejection
For being me is what I need,
Not dwelling in another's Reflection
Re-Awaken Our Fighting Spirit
We must re-focus on moving on
Living in sadness and helplessness
Is what freezes us like ice
Too scared to move for fear of
Experiencing more pain, the spice
Of life is gone, we ponder,
More than ever, what will be
Of us, if we don't think to
Re-awaken our FIGHTING SPIRIT
And respect our heartfelt screams of pain
'Save me please, I want out of this dilemma
And into the light of ease.
Sabotage, To Fill The Void
When the usual worry is gone
We sabotage our lives with another
There's an urge to fill that void
As you're used to a certain familiar feel
The one that has been there making us sad.
To feel nothing seems worse than before
If only the security of pain
Comes back in another form
Then I have Safety in Sorrow again.
There is hope that acceptance
Of filling the void with Love
Shall break me free of the chains
That I believed I am deserving,
This constant pain.
Let Go, To Receive
When I felt the pain of abandonment
My World seemed chaotic
A war of tears inside my head
I wanted to be numb to my devastation
So I masked my thoughts
To the Realization, but I knew
I must be true.
Let go of the pain
Close that door
As another waits
Forget the rain and welcome the sun
Be ready to receive the new
Replace that sad moment
With a Joyous one.
I cried tears of sorrow
I cried tears of happiness
The best thing of all
I knew my life was blessed.
Excerpted from The Gift Within by Margie Kugler. Copyright © 2013 Margie Kugler. Excerpted by permission of Balboa Press.
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