This historic book may have numerous typos and missing text. Purchasers can usually download a free scanned copy of the original book (without typos) from the publisher. Not indexed. Not illustrated. 1991-09 edition. Excerpt: ... promote wide applications of healthrelated data. HDOs should release non-person-identifiable data upon request to a variety of other entities that meet certain criteria; these criteria involve public missions to promote public health and publicly released information and explicit policies about data protection. The committee also recommends that HDOs make public their policies governing data release (Recommendation 3.4). This chapter has only tangentially touched on privacy and confidentiality matters as they relate to person-identified and person-identifiable data. The next chapter presents those issues in some detail. APPENDIX 3A FAIRNESS AND PUBLIC DISCLOSURE OF DATA Chapter 3 advances the proposition that an appropriate balance must be found concerning fairness to the public and to providers in the public disclosure of health-related information by health database organizations. The committee notes that this balance may be more difficult to attain than is commonly appreciated, in part because of inappropriate reliance on technical and statistical decisions and methods. This appendix attempts to illustrate the pitfalls that may confront even relatively straightforward public disclosure activities, using information that is in the public domain from the statewide study in New York State on hospital-specific deaths following coronary artery bypass graft (CABG) in 1991. Actual Numbers, Computed Values, and Risk Adjustment When HDOs attempt to disseminate information about providers in ways useful to the public, they are likely to rank providers according to data that either report actual events or reflect computed values. The former might include the number of patients who undergo CABG in each hospital in New York State and the number...
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Richard S. Dick, Elaine B. Steen, and Don E. Detmer, Editors; Committee on Improving the Patient Record, Institute of Medicine
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