This text provides a guide for hereditary genetic disorders in the USA. It provides guidance on questions to ask doctors and genetic councillors, how health-care systems, government policies and insurance companies influence the options as well as pointing to further information and counselling. Through the stories of real families and the choices thay made about genetic testing (for diseases such as sickle-cell anemia, Huntingdon disease and muscular distrophy) the author helps the readers think through their own alternatives and discuss them with relatives.
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DORIS TEICHLER ZALLEN is a professor of Science and Technology Studies at Virginia Tech's Center for Interdisciplinary Studies. An expert in genetic technologies and bioethics in medicine, Zallen has served as a member of the NIH Recombinant DNA Advisory Committee and the Subcommittee on Human Gene Therapy, and works to develop policies and guidelines for human genetics research and its clinical applications.
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