In the Shadow of Illness: Parents and Siblings of the Chronically Ill Child - Softcover

Bluebond-Langner, Myra

Softcover

ISBN 10: 0691050791 ISBN 13: 9780691050799

Publisher: Princeton University Press, 2000

Synopsis

What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness-from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.

About this title

About the Author

Myra Bluebond-Langner is professor emerita at University College London and Board of Governors Professor of Anthropology Emerita at Rutgers University. She is also the author of The Private Worlds of Dying Children (Princeton), winner of the Margaret Mead Award.

From the Back Cover

"This book powerfully illuminates the everyday experience of families living with a chronically ill child."--Patricia A. Marshall, Associate Director of Medical Humanities Program at Loyola University Chicago, Strich School of Medicine

Edition details

• Publisher: Princeton University Press
• Publication date: 2000
• Language: English
• ISBN 10: 0691050791
• ISBN 13: 9780691050799
• Binding: Paperback
• Number of pages: 322