Narrating the New Predictive Genetics: Ethics, Ethnography and Science (Cambridge Studies in Society and the Life Sciences) - Softcover

Konrad, Monica

 
9780521540667: Narrating the New Predictive Genetics: Ethics, Ethnography and Science (Cambridge Studies in Society and the Life Sciences)

Synopsis

This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confidentiality and use of the information by family members and other third parties. What are the implications of this knowledge for individuals and their families? And for society more widely? How should this new information be used? How do people deal with the choices that new knowledge and technologies offer? Drawing on extensive ethnographic research with families affected by Huntington's Disease, and using perspectives from medical and cultural anthropology, the author explores the huge disparity between the experience of living with the results of genetic testing and the knowledge and expertise which are drawn on to develop policy and clinical services.

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About the Author

Monica Konrad is Fellow of Girton College and Research Associate at the Department of Social Anthropology, University of Cambridge. Her recent publications address the relevance of contemporary anthropology for global governance in science, international bioethics, and interdisciplinary studies.

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Other Popular Editions of the Same Title

9780521833141: Narrating the New Predictive Genetics: Ethics, Ethnography and Science (Cambridge Studies in Society and the Life Sciences)

Featured Edition

ISBN 10:  0521833140 ISBN 13:  9780521833141
Publisher: Cambridge University Press, 2005
Hardcover