Effect of the HIPAA Privacy Rule on Health Research: Proceedings of a Workshop Presented to the National Cancer Policy Forum - Softcover

Institute Of Medicine; National Cancer Policy Forum

Softcover

ISBN 10: 030910291X ISBN 13: 9780309102919

Publisher: National Academies Press, 2006

Synopsis

The Health Insurance Portability and Accountability Act (HIPAA) of 1996 was enacted to improve the portability and continuity of health insurance; promote medical savings accounts; improve access to long-term care services and coverage; and simplify the administration of health insurance. HIPAA's Administrative Simplification provisions focus on facilitating the electronic exchange of information for financial and administrative functions related to patient care. However, the very advances that make it easier to transmit information also present challenges to preserving the confidentiality of potentially sensitive personal information contained in medical records. In 2003, the President's Cancer Panel discovered HIPAA Privacy Rule slowed research on cancer survivors, as well as causing increased bureaucracy, informed consent problems, and complications for clinical trials. Effect of the HIPAA Privacy Rule on Health Research evaluates the impact of HIPAA provisions and provides guidance to legislators on amendments needed to make this law better serve the interests of cancer survivors and others.

About this title

About the Author

National Cancer Policy Forum, Roger Herdman and Harold Moses, Rapporteurs

Edition details

• Publisher: National Academies Press
• Publication date: 2006
• Language: English
• ISBN 10: 030910291X
• ISBN 13: 9780309102919
• Binding: Paperback
• Edition number: 1
• Number of pages: 102