Nothing about us, without us!: 20 years of dementia advocacy - Softcover

Christine Bryden

Softcover

ISBN 10: 1849056714 ISBN 13: 9781849056717

Publisher: Jessica Kingsley Publishers, 2015

Synopsis

Advocating for dementia for 20 years, Christine Bryden has been instrumental in ensuring that people with dementia are included in discussions about the condition and how to manage and think about it. This collection of her hard-hitting and inspiring insider presentations demands 'nothing about us, without us!' and promotes self-advocacy and self-reflection. Provocative and insightful, the pieces included in the book address issues that demand attention, and will change the way dementia is perceived, and the lives of people with dementia and their families.

About this title

Review:

Christine's journey as a dementia advocate is truly remarkable. This collection of talks and presentations demonstrates the incredible progress that has been made as a result of her determination to make the world a more inclusive place for people living with dementia. I thank Christine for telling her story to the world, and share her hope that this book will help make this dream a reality. --Marc Wortmann, Executive Director, Alzheimer s Disease International

Christine Bryden speaks and writes with the conviction gained through her experiences of living with and challenging this disease over two decades, since diagnosis. Issues of stigma, care, hope and ways of living effectively with dementia are just some of the important topics she addresses. This collection of talks with slides will form a valuable resource for many: for people who have dementia, for their families, for care providers, and certainly for the wider community. --Elizabeth MacKinlay, Centre for Ageing and Pastoral Studies, St Mark's National Theological Centre, School of Theology, Charles Sturt University, Australia

You must read Christine Bryden's book if you have any connection with dementia (and even if you do not, because at some point you will). Christine speaks to us elegantly and forcefully from that other 'country' of dementia as one of its leading ambassadors. She humanizes this condition, and takes you along on her journey through this territory. No one can truly say that they "understand" dementia until finishing this stirring and totally candid volume. Do so - today. --Cameron J. Camp, Ph.D., Director of Research, Center for Applied Research in Dementia, Ohio, USA

From the Author:

Christine Bryden had a high-powered job in the Department of the Australian Prime Minister and was a single mother of three children when she was diagnosed with dementia in 1995. Since then, she has gone on to challenge almost every stereotype of people with dementia, speaking at national and international conferences and campaigning for self-advocacy. In 2003, she was the first person with dementia to be elected to the Board of Alzheimer's Disease International (ADI). Christine lives with her husband, Paul, in Brisbane, Australia. She is the author of 'Dancing with Dementia' and 'Who will I be when I die?', both published by JKP.

About this edition

• Publisher: Jessica Kingsley Publishers
• Publication date: 2015
• ISBN 10: 1849056714
• ISBN 13: 9781849056717
• Binding: Paperback
• Number of pages: 304