Items related to Prader-Willi Syndrome: Home, School and Community
"Prader-Willi Syndrome: Home, School and Community" describes research and practice relating to this condition. Relatively little has been written about the complex social, educational and behavioural issues that arise until now. This is the first book to discuss the concerns and options and provide practical examples. It is easy to read, addressing the major problems from the child's and family's perspectives. Recommendations cover childhood and adult phases of development. Practical suggestions for dealing with a range of issues concerning parents are included. Based on a study of families with a child or adult with Prader-Willi, the behavioural and social challenges including quality of life at school, home and in the community are examined. The challenges and possibilities which are emerging concerning behavioural and social intervention are anticipated. This book is recommended to all professionals in health, education and social services working with those with Prader-Willi syndrome. There is information that parents may also find useful.
"synopsis" may belong to another edition of this title.
Synopsis:
This reference book is for the many groups of people who care for children and adults who are handicapped by syndromes and inherited disorders. The 70 conditions described are those most commonly found in the community. Handicap arising from syndromes and inherited disorders occurs worldwide, causing common problems for families and society, not least for those deprived of the potential for autonomy. The author has compiled a practical work of reference which describes the disorder and the problems of the child and adult, pointing the way to day-to-day practical management. Current self-help groups are listed for each condition and the text is well indexed in order to refer to similar conditions. Although the text is written in non-technical language, the description of the conditions contains enough detail for the medical, nursing and midwifery professions. The non-medical worker will have a more continuous role to play in the long-term management of children and adults and, therefore, nursery nurses and social workers will find this useful as a basis for both assessing need and potential in their students and clients.
"About this title" may belong to another edition of this title.
- PublisherSingular Pub Group
- Publication date1992
- ISBN 10 1565930460
- ISBN 13 9781565930469
- BindingPaperback
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