Loving Andrew: A Fifty-Two-Year Story of Down Syndrome

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9781478298342: Loving Andrew: A Fifty-Two-Year Story of Down Syndrome

October 2016. Book Excellence Awards - Finalist in Parenting Category. September 2014. Readers' Favorite Book Awards - Honorable Mention in Parenting. May 2014. National Indie Excellence Book Awards - Finalist in Parenting & Family. May 2014. Eric Hoffer Awards - Honorable Mention in Memoir; Finalist for Grand Prize & Montaigne Medal. March 2014. Beverly Hills Book Awards - Finalist in Parenting & Family. December, 2013 - Named to Kirkus Reviews and IndieReader 'Best of 2013.' June 1, 2013 – LOVING ANDREW won second place in the non-fiction category of the IndieReader Discovery Awards, which were announced at BookExpo America, a major trade show in New York City. The book was awarded five stars out of five—see IndieReader Review May 13, 2013.

A mother recounts how the birth of Andrew with Down syndrome, and the loss to cancer of a second baby start a family's journey through the maze of parenthood. With the support of a loving father, mother, and two younger siblings, Andrew mastered the skills of life and became a contributing member of society. In spite of coping with schizophrenia in his later years, Andrew remained active, happy, and full of love until Alzheimer's stole his memory and brought his life to a close at the age of fifty-two.

In spite of being told that their firstborn son would have many limitations in life, his parents were amazed at what Andrew achieved. He learned to read and write, ride a bicycle – sometimes too far from home – play the piano, swim, ride horseback and perform dressage, graduate in special education from high school, take classes at a community college, travel alone on Chicago’s public transportation system, hold a job in a regular supermarket for 25 years, win ribbons and medals in Special Olympics events, and serve as the lead acolyte in his church. Andrew’s ability to describe the demons of his paranoid schizophrenia that plagued his later years provides a picture of a little-known ailment among the Down syndrome population.

This book is aimed at a broad audience in order to help all people understand the humanity and value of a person with a disability. This is especially important as medical technology continues to improve prenatal testing for abnormalities, and parents are faced with the heart-wrenching decision to terminate a pregnancy or risk having a less-than-perfect baby. The number of children born with Down syndrome is being drastically reduced, just as opportunities for them to be accepted into the mainstream of life have never been better, and their development has improved exponentially. Life is a game of chance and we should not expect to play God. No embryo selection or prenatal test can guarantee a flawless product or rule out unexpected calamities such as the death to cancer of our second baby.

Interwoven in the story of Andrew are: half a century of changing attitudes toward the developmentally disabled; improved educational opportunities; and discussions on pre-natal testing and abortion. Examples from two other children with Down syndrome, born 21 and 35 years after Andrew, help to illustrate the services that became available after passage of the law “Education for All Handicapped Children” in 1975, and underline the challenges that we faced without such services.

Excerpt from the Foreword by Brian Chicoine, MD: “As the medical director of the Adult Down Syndrome Center... I always appreciate any occasion to get a more in-depth look into the lives of those individuals and their families. This book is one such opportunity... It is about the hope of that journey, and is told through the life of an amazing, delightful, loving, fun, and caring man. Each person has a story. Andrew certainly had his. . . Perhaps you, too, will experience the journey, the hope, and the casting aside of preconceived notions.”

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About the Author:

ROMY WYLLIE has an MA in English and History from the University of St. Andrews, Scotland (1955), a diploma in business and secretarial practices from St. Godric’s College in London (1956); and a diploma in interior design from the Harrington Institute of Interior Design in Chicago (1974).

Romy started writing in her mid-sixties after a devastating wildfire destroyed fifty percent of the houses in her neighborhood. Realizing that all the materials she had been saving to recount the story of bringing up a child with Down syndrome would have been destroyed if her house had burned, she took a college writing class and started her first book. Although that book took eighteen years to reach publication, Wyllie wrote two books on architecture: Caltech’s Architectural Heritage: From Spanish Tile to Modern Stone published in 2000 by Balcony Press of Los Angeles; and Bertram Goodhue: His Life and Residential Architecture published in 2007 by W. W. Norton of New York and London. A monograph, Eva Maddox:Innovator, Designer, Educator will be published by The Images Publishing Group in Fall 2017. Excerpts from her book on Down syndrome have been published as opinion pieces in national newspapers.

Romy lives with her husband Peter, a professor emeritus of Geology, in Pasadena, California.

www.romywyllie.com

From Kirkus Reviews:

When the hospital staff delayed bringing Wyllie her firstborn child after his birth in 1959, she was. . uneasy, and rightfully so: Andrew was diagnosed as a mongoloid, or what is now known as. . Down syndrome. Troubled by the doctor’s explanation that “sometimes the best policy is to inform the mother . . . that the child has died and then place him immediately in an institution,” she and her husband decide to keep their son at home and raise him as normally as possible. Wyllie details the early struggles with Andrew, from difficulties nursing to apprehension over what their family, friends and neighbors might think. She recounts their lengthy search for a school program to fit Andrew’s capabilities and their great fortune in finding Lambs Farm, . . where Andrew lived happily for most of his adult life. Wyllie’s writing is lucid and remarkably forthright. She doesn’t shy away from the negatives, such as her frustrations and mistakes as the parent of a special needs child. . . She also conveys the grief she faced in the tragic cancer death of her 14-month-old second child. The book features Andrew’s writing and drawings, letters from his teachers and co-workers, and interviews with many of the people in his life, which provide an intimate look at his intellectual, emotional and physical development. . . Her account of the history and science behind the disorder is thoroughly researched yet highly readable, and she evenhandedly discusses the possible impacts of modern prenatal genetic testing. Of her . . struggle for better resources, Wyllie remembers that “the most difficult task was to capture the interest of the average person who does not have a special needs child.” Transcending this aim, her book is as richly absorbing for casual readers as for caregivers and loved ones of Down syndrome children and adults.
This clear-eyed, intelligent memoir is an invaluable resource for anyone whose life is affected by a developmental disability.

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Romy Wyllie
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Book Description Createspace Independent Publishing Platform, United States, 2012. Paperback. Book Condition: New. James Alexander of Jade Design (illustrator). Language: English . Brand New Book ***** Print on Demand *****.October 2016. Book Excellence Awards - Finalist in Parenting Category. September 2014. Readers Favorite Book Awards - Honorable Mention in Parenting. May 2014. National Indie Excellence Book Awards - Finalist in Parenting Family. May 2014. Eric Hoffer Awards - Honorable Mention in Memoir; Finalist for Grand Prize Montaigne Medal. March 2014. Beverly Hills Book Awards - Finalist in Parenting Family. December, 2013 - Named to Kirkus Reviews and IndieReader Best of 2013. June 1, 2013 - LOVING ANDREW won second place in the non-fiction category of the IndieReader Discovery Awards, which were announced at BookExpo America, a major trade show in New York City. The book was awarded five stars out of five-see IndieReader Review May 13, 2013. A mother recounts how the birth of Andrew with Down syndrome, and the loss to cancer of a second baby start a family s journey through the maze of parenthood. With the support of a loving father, mother, and two younger siblings, Andrew mastered the skills of life and became a contributing member of society. In spite of coping with schizophrenia in his later years, Andrew remained active, happy, and full of love until Alzheimer s stole his memory and brought his life to a close at the age of fifty-two. In spite of being told that their firstborn son would have many limitations in life, his parents were amazed at what Andrew achieved. He learned to read and write, ride a bicycle - sometimes too far from home - play the piano, swim, ride horseback and perform dressage, graduate in special education from high school, take classes at a community college, travel alone on Chicago s public transportation system, hold a job in a regular supermarket for 25 years, win ribbons and medals in Special Olympics events, and serve as the lead acolyte in his church. Andrew s ability to describe the demons of his paranoid schizophrenia that plagued his later years provides a picture of a little-known ailment among the Down syndrome population. This book is aimed at a broad audience in order to help all people understand the humanity and value of a person with a disability. This is especially important as medical technology continues to improve prenatal testing for abnormalities, and parents are faced with the heart-wrenching decision to terminate a pregnancy or risk having a less-than-perfect baby. The number of children born with Down syndrome is being drastically reduced, just as opportunities for them to be accepted into the mainstream of life have never been better, and their development has improved exponentially. Life is a game of chance and we should not expect to play God. No embryo selection or prenatal test can guarantee a flawless product or rule out unexpected calamities such as the death to cancer of our second baby. Interwoven in the story of Andrew are: half a century of changing attitudes toward the developmentally disabled; improved educational opportunities; and discussions on pre-natal testing and abortion. Examples from two other children with Down syndrome, born 21 and 35 years after Andrew, help to illustrate the services that became available after passage of the law -Education for All Handicapped Children- in 1975, and underline the challenges that we faced without such services. Excerpt from the Foreword by Brian Chicoine, MD: -As the medical director of the Adult Down Syndrome Center. I always appreciate any occasion to get a more in-depth look into the lives of those individuals and their families. This book is one such opportunity. It is about the hope of that journey, and is told through the life of an amazing, delightful, loving, fun, and caring man. Each person has a story. Andrew certainly had his. . . Perhaps you, too, will experience the journey, the hope, and the casting aside of preconceived notions.-. Bookseller Inventory # APC9781478298342

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Book Description Createspace Independent Publishing Platform, United States, 2012. Paperback. Book Condition: New. James Alexander of Jade Design (illustrator). Language: English . Brand New Book ***** Print on Demand *****. October 2016. Book Excellence Awards - Finalist in Parenting Category. September 2014. Readers Favorite Book Awards - Honorable Mention in Parenting. May 2014. National Indie Excellence Book Awards - Finalist in Parenting Family. May 2014. Eric Hoffer Awards - Honorable Mention in Memoir; Finalist for Grand Prize Montaigne Medal. March 2014. Beverly Hills Book Awards - Finalist in Parenting Family. December, 2013 - Named to Kirkus Reviews and IndieReader Best of 2013. June 1, 2013 - LOVING ANDREW won second place in the non-fiction category of the IndieReader Discovery Awards, which were announced at BookExpo America, a major trade show in New York City. The book was awarded five stars out of five-see IndieReader Review May 13, 2013. A mother recounts how the birth of Andrew with Down syndrome, and the loss to cancer of a second baby start a family s journey through the maze of parenthood. With the support of a loving father, mother, and two younger siblings, Andrew mastered the skills of life and became a contributing member of society. In spite of coping with schizophrenia in his later years, Andrew remained active, happy, and full of love until Alzheimer s stole his memory and brought his life to a close at the age of fifty-two. In spite of being told that their firstborn son would have many limitations in life, his parents were amazed at what Andrew achieved. He learned to read and write, ride a bicycle - sometimes too far from home - play the piano, swim, ride horseback and perform dressage, graduate in special education from high school, take classes at a community college, travel alone on Chicago s public transportation system, hold a job in a regular supermarket for 25 years, win ribbons and medals in Special Olympics events, and serve as the lead acolyte in his church. Andrew s ability to describe the demons of his paranoid schizophrenia that plagued his later years provides a picture of a little-known ailment among the Down syndrome population. This book is aimed at a broad audience in order to help all people understand the humanity and value of a person with a disability. This is especially important as medical technology continues to improve prenatal testing for abnormalities, and parents are faced with the heart-wrenching decision to terminate a pregnancy or risk having a less-than-perfect baby. The number of children born with Down syndrome is being drastically reduced, just as opportunities for them to be accepted into the mainstream of life have never been better, and their development has improved exponentially. Life is a game of chance and we should not expect to play God. No embryo selection or prenatal test can guarantee a flawless product or rule out unexpected calamities such as the death to cancer of our second baby. Interwoven in the story of Andrew are: half a century of changing attitudes toward the developmentally disabled; improved educational opportunities; and discussions on pre-natal testing and abortion. Examples from two other children with Down syndrome, born 21 and 35 years after Andrew, help to illustrate the services that became available after passage of the law -Education for All Handicapped Children- in 1975, and underline the challenges that we faced without such services. Excerpt from the Foreword by Brian Chicoine, MD: -As the medical director of the Adult Down Syndrome Center. I always appreciate any occasion to get a more in-depth look into the lives of those individuals and their families. This book is one such opportunity. It is about the hope of that journey, and is told through the life of an amazing, delightful, loving, fun, and caring man. Each person has a story. Andrew certainly had his. . . Perhaps you, too, will experience the journey, the hope, and the casting aside of preconceived notions.-. Bookseller Inventory # APC9781478298342

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Book Description CreateSpace Independent Publishing Platform. Paperback. Book Condition: New. This item is printed on demand. Paperback. 306 pages. Dimensions: 9.0in. x 6.0in. x 0.7in.May 2014. National Indie Excellence Book Awards - Finalist in Parenting and Family. May 2014. Eric Hoffer Awards - Honorable Mention in Memoir; Finalist for Grand Prize and Montaigne Medal. March 2014. Beverly Hills Book Awards - Finalist in Parenting and Family. December, 2013 - Named to Kirkus Reviews and IndieReader Best of 2013. June 1, 2013 LOVING ANDREW won second place in the non-fiction category of the IndieReader Discovery Awards, which were announced at BookExpo America, a major trade show in New York City. The book was awarded five stars out of fivesee IndieReader Review May 13, 2013. A mother recounts how the birth of Andrew with Down syndrome, and the loss to cancer of a second baby start a familys journey through the maze of parenthood. With the support of a loving father, mother, and two younger siblings, Andrew mastered the skills of life and became a contributing member of society. In spite of coping with schizophrenia in his later years, Andrew remained active, happy, and full of love until Alzheimers stole his memory and brought his life to a close at the age of fifty-two. In spite of being told that their firstborn son would have many limitations in life, his parents were amazed at what Andrew achieved. He learned to read and write, ride a bicycle sometimes too far from home play the piano, swim almost as well as his siblings, ride horseback and perform dressage, graduate in special education from high school, take classes at a community college, travel alone on Chicagos public transportation system, hold a job in a regular supermarket for 25 years, win ribbons and medals in Special Olympics events, and serve as the lead acolyte in his church. Andrews ability to describe the demons of his paranoid schizophrenia that plagued his later years provides a picture of a little-known ailment among the Down syndrome population. This book is aimed at a broad audience in order to help all people understand the humanity and value of a person with a disability. This is especially important as medical technology continues to improve prenatal testing for abnormalities, and parents are faced with the heart-wrenching decision to terminate a pregnancy or risk having a less-than-perfect baby. The number of children born with Down syndrome is being drastically reduced, just as opportunities for them to be accepted into the mainstream of life have never been better, and their development has improved exponentially. Life is a game of chance and we should not expect to play God. No embryo selection or prenatal test can guarantee a flawless product or rule out unexpected calamities such as the death to cancer of our second baby. Interwoven in the story of Andrew are: half a century of changing attitudes toward the developmentally disabled; improved educational opportunities; and discussions on pre-natal testing and abortion. Examples from the stories of two other children with Down syndrome, born 21 and 35 years after Andrew, help to illustrate the services that became available after passage of the law Education for All Handicapped Children in 1975, and underline the challenges that we faced without such services. Excerpt from the Foreword by Brian Chicoine, MD: As the medical director of the Adult Down Syndrome Center I always appreciate any occasion to get a more in-depth look into the lives of those individuals and their families. This book is one such opportunity It is about the hope of that journey, and is told through the life of an amazing, delightful, loving, fun, and caring man. Each person has a story. Andrew certainly had his. In this book, you will get to know Andrew, learn his story, appreciate him, and love him. Perhaps you, too, will experience the journey, the hope, and the casting aside of preconceived notions. This item ships from La Vergne,TN. Paperback. Bookseller Inventory # 9781478298342

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