Elijah's Cup: A Family's Journey into the Community and Culture of High-Functioning Autism and Asperger's Syndrome - Softcover

Paradiz, Valerie

Softcover

ISBN 10: 1416567763 ISBN 13: 9781416567769

Publisher: Free Press, 2007

Synopsis

Faced with her two-year-old toddler's precipitous bout with epilepsy and his puzzling behaviors, Valerie Paradiz took a bold and unusual path, coming to terms with and ultimately embracing the strange beauty of her son Elijah's special neurological disorder, which was diagnosed as Asperger's syndrome, a form of autism. In "Elijah's Cup," Paradiz tells the powerful story of her family's struggle with her son's disease, one characterized by social awkwardness, literal-mindedness, and a fixation with particular subjects and interests. Like attention deficit disorder (ADD), dyslexia, depression, and obsessive-compulsive disorder, Asperger's has exploded in diagnosis in the last decade, reconfiguring the known incidence of autism in the population with estimates as high as one in fifty people. Ever since autism was "discovered" by researchers in the 1940s, the disability has been under the strict purview of professionals in medicine, psychiatry, and education. Like the deaf community, autistics themselves have had little voice in expressing their real experience and needs. They were framed as too "sick" to be conscious of their own internal lives, too "mentally ill" to possess an identity. All this has changed. Today there is a blossoming movement of autistic self-advocacy groups and alliances that pose challenging questions to the medical status quo. A fascinating, independent expression of another way of life, full of quirkiness, hardship, and humor, has emerged. "Elijah's Cup" is a provocative and pioneering book that pushes the envelope of what we know about autism. Were Andy Warhol, Albert Einstein, and the comedian Andy Kaufman, whom we usually think of as brilliant eccentrics, autistic? Can these figures serve as role models to this community? "Elijah's Cup" offers a refreshing take on mental disability from the perspective of civil rights, history, and the arts. From encounters with the founders of the first civil rights organizations for autistics, who guide Paradiz and her son toward a sense of community and self-respect, and with visual artists, who share with Elijah their special ability to "think in pictures," Elijah reaches extraordinary heights in his sociability and emotional well-being. In this utterly absorbing and inspiring narrative, Paradiz also reveals her own shadow syndrome, which afflicts many family members of autistics. She is a "cousin," a genetic link to her son's autism. Standing as she does on this cultural borderline, Paradiz is a sensitive translator between two worlds, revealing a groundbreaking insider's view of the beauty of minds hidden in the shadows of autism.

About this title

Review

Gail Godwin

Valerie Paradiz's appealing narrative of day-to-day living with her autistic son held me from start to finish. It brims with insights, especially those stressing the importance of "dismantling our fear" of other ways of perceiving. Very timely and resonant.

Oliver Sacks

author of "The Man Who Mistook His Wife for a Hat"

Valerie Paradiz has written a moving and eloquent chronicle of the diagnosis of her son, Elijah, with Asperger's syndrome and their journey together into the world of high-functioning autism. Her book is an important addition to the literature of autism, full of beautifully observed moments.

Donna Williams

author of "Nobody Nowhere"

Valerie Paradiz has written an honest, artistic, and very human account of the impact of this exceptional and controversial social-political movement on her life and that of her colorful son, Elijah. She captures how this sometimes mind-blowing social adventure in a world rarely visited by most people expanded their lives and helped shape a different place of belonging within the world.

Maria Asperger

Child Psychiatrist

Sixty years ago, my father, the Austrian pediatrician, Hans Asperger, revealed the appealing and often overlooked qualities of these unusual children. He also showed how we even find some resonance of their difficult traits within ourselves. Now it's time for us to hear more directly the voice of autistic people and that of their parents. Valerie Paradiz has given us a precious gift of a book, full of her own experiences with her son.

Donna Williams author of "Nobody Nowhere" Valerie Paradiz has written an honest, artistic, and very human account of the impact of this exceptional and controversial social-political movement on her life and that of her colorful son, Elijah. She captures how this sometimes mind-blowing social adventure in a world rarely visited by most people expanded their lives and helped shape a different place of belonging within the world.

Gail Godwin Valerie Paradiz's appealing narrative of day-to-day living with her autistic son held me from start to finish. It brims with insights, especially those stressing the importance of "dismantling our fear" of other ways of perceiving. Very timely and resonant.

Oliver Sacks author of "The Man Who Mistook His Wife for a Hat" Valerie Paradiz has written a moving and eloquent chronicle of the diagnosis of her son, Elijah, with Asperger's syndrome and their journey together into the world of high-functioning autism. Her book is an important addition to the literature of autism, full of beautifully observed moments.

Maria Asperger Child Psychiatrist Sixty years ago, my father, the Austrian pediatrician, Hans Asperger, revealed the appealing and often overlooked qualities of these unusual children. He also showed how we even find some resonance of their difficult traits within ourselves. Now it's time for us to hear more directly the voice of autistic people and that of their parents. Valerie Paradiz has given us a precious gift of a book, full of her own experiences with her son.

About the Author

Valerie Paradiz was born in Colorado and has lived and worked in Germany and Japan. For several years she has taught literature and writing at Bard College in Annandale-on-Hudson. She lives with her son in Woodstock, New York.

About this edition

• Publisher: Free Press
• Publication date: 2007
• ISBN 10: 1416567763
• ISBN 13: 9781416567769
• Binding: Paperback
• Number of pages: 256