The diary of Jean-Dominique Bauby who, with his left eyelid (the only surviving muscle after a massive stroke) dictated a remarkable book about his experiences locked inside his body. A masterpiece and a bestseller in France.
On 8 December 1995, Jean-Dominique Bauby suffered a massive stroke and slipped into a coma. When he regained consciousness three weeks later, the only muscle left functioning was in his left eylid although his mind remained as active and alert as it had ever been. He spent most of 1996 writing this book, letter by letter, blinking as an alphabet was repeatedly read out to him. The Diving-Bell and the Butterfly was published in France on Thursday 6th March 1997. It was immediately hailed as a masterpiece. And then, three days later, he died.
The Diving-Bell and the Butterfly, which records Bauby’s lonely existence, is probably the most remarkable book about the triumph of the human spirit, the ability to invent a life for oneself in the most appalling of circumstances, that you will ever read.
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Bauby relays the horrors and small graces of his struggle, which range from awaking one day to discover his right eye being sewn shut to realising the significance of Father's Day, a holiday previously absent from his family's "emotional calendar": "Today we spent the whole of the symbolic day together, affirming that even a rough sketch, a shadow, a tiny fragment of a dad is still a dad." The author makes it clear that being locked in doesn't kick open the doors of perception, but The Diving Bell and the Butterfly is nonetheless a celebration of life. Jean Dominique-Bauby died of a heart attack on March 9, 1997, two days after his book was published in France.
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