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Chasing Miracles: The Crowley Family Journey of Strength, Hope, and Joy (Large Print 16pt) - Softcover
A personal memoir from the family that inspired the film Extraordinary Measures, starring Brendan Fraser, Harrison Ford, and Keri Russell - a fathers story of his determination to save the lives of his two youngest children born with a rare genetic disorder and finding hope, strength, and joy despite extraordinary challenges.When John and Aileen Crowley learned that their two youngest children had a rare and little understood genetic disorder, they didn't hope for miracles: they made them happen.In 1998, 15-month old Megan and 4-month old Patrick were diagnosed with Pompe disease, a rare and fatal neuromuscular disorder that affects only a few thousand children worldwide, usually leaving them with little to no muscle function, enlarged hearts, and severe difficulty breathing. John Crowley was absolutely determined to find a treatment to save his children's lives. At the age of 31, he walked away from the corporate world to help co-found a start-up biotech company, focused exclusively on developing a treatment for Pompe.A truly uplifting and inspiring book that captures this remarkable family's everyday life, this is a memoir about life and love; about coping with adversity; and, most importantly, about what it means to never, never quit.
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About the Author:
John F. Crowley is an American business and social entrepreneur. The son of a New Jersey cop, who died on duty when John was 7 years old, he has earned degrees from Georgetown University, Notre Dame Law School, and the Harvard Business School. He worked for Bristol-Myers Squibb before leaving to take a position as CEO of a start-up biotech company searching for a treatment for Pompe disease.
Crowley is currently the President & CEO of Amicus Therapeutics, a publicly held biopharmaceutical company working on the development of drugs to treat a range of human genetic diseases and diseases of neurodegeneration. A widely acclaimed public speaker, he also serves on the board of the National Make-A-Wish Foundation and is a commissioned officer in the U.S. Navy Reserve, assigned to the U.S. Special Operations Command.
John and his wife, Aileen, live in Princeton, New Jersey, with their two sons, John, Jr. and Patrick, and their daughter, Megan.
Ken Kurson is the co-writer of Rudy Giuliani's "New York Times" bestseller "Leadership" and David Faber's "The Faber Report." He has also written for "Forbes," "Money," and "The New York Times," and has been a contributing editor at "Esquire" for more than ten years.
Crowley is currently the President & CEO of Amicus Therapeutics, a publicly held biopharmaceutical company working on the development of drugs to treat a range of human genetic diseases and diseases of neurodegeneration. A widely acclaimed public speaker, he also serves on the board of the National Make-A-Wish Foundation and is a commissioned officer in the U.S. Navy Reserve, assigned to the U.S. Special Operations Command.
John and his wife, Aileen, live in Princeton, New Jersey, with their two sons, John, Jr. and Patrick, and their daughter, Megan.
Ken Kurson is the co-writer of Rudy Giuliani's "New York Times" bestseller "Leadership" and David Faber's "The Faber Report." He has also written for "Forbes," "Money," and "The New York Times," and has been a contributing editor at "Esquire" for more than ten years.
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- Publication date2012
- ISBN 10 1458758257
- ISBN 13 9781458758255
- BindingPaperback
- Rating
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